We offer a range of targeted programs designed to empower the sickle cell community, focusing on local, accessible, and comprehensive care across Benin and Africa.
Overview: Facilitated local groups providing a safe space for patients and caregivers to share experiences, gain emotional support, and exchange practical advice on living with SCD.
Frequency: Monthly meetings in major regional cities (Cotonou, Porto-Novo, etc.).
Focus: Peer-to-peer counseling, stress management, navigating social stigma, and shared advocacy efforts.
Overview: Training sessions focused on the clinical management of SCD, covering topics like pain crisis prevention, recognizing complications, and managing medication regimens.
Topics: Hydration techniques, infection prevention, and maternal health for women with SCD.
Accessibility: Offered free of charge and often streamed online for wider African reach.
Overview: Mobile clinics and local health center partnerships to offer free screening for newborns and children, and subsidized diagnostic testing for adults.
Impact: Early diagnosis dramatically improves long-term outcomes for children with SCD.
Locations: Focus on underserved rural and remote communities where access to testing is limited.
Overview: A program designed to bridge the gap in affordable treatment by subsidizing essential medications (like Hydroxyurea) and providing necessary medical supplies.
Partnerships: Working with international pharmaceutical donors and local pharmacies to negotiate lower costs.
Eligibility: Based on financial need and clinical severity, prioritizing children and single-parent households.
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